Stand Up for Parkinson's
My name is Rick Suvanto, and I am reaching out to invite you to join me in raising awareness about Parkinson’s disease. As one of the 110,000 Canadians living with this condition, I understand firsthand the challenges it brings—not just physically, but emotionally and socially. Too often, those with Parkinson’s live in solitude, whether due to the stigma they face, fear of public reaction, or symptoms such as rigidity, depression, and apathy.
It’s time to change the narrative. Parkinson’s is the fastest-growing neurological disease, and the number of Canadians living with Parkinson's is projected to double in the coming years, highlighting the urgent need for awareness, resources, and support. People living with Parkinson’s are you, your friends, family, neighbors, and colleagues. Despite daily struggles, we fight to continue living meaningful lives, and we need the world to stand with us.
Together, we can reduce stigma, foster understanding, and show support. Whether it’s by sharing stories, educating others, or advocating for better resources, every action counts. I’d love the opportunity to collaborate with you to help put a face to Parkinson’s and ensure no one faces this disease in isolation. I look forward to connecting and exploring ways we can make a difference together.
Rick #StandUpForParkinsons #Iam1of110000 #ParkinsonsLooksLikeMe
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Parkinson's awareness month might be over but please let's not stop the conversation
I created this webpage to help me connect with people living with Parkinson's for my art project, I Am One of 110,000, and to put a face to Parkinson's. More importantly, I hope as a quick and accessible resource for those who are newly diagnosed.
If you have any questions or suggestions for topics to feature, or if there's information you believe would be helpful, please don’t hesitate to reach out. This webpage is for everyone navigating life with Parkinson’s, and your input can help make it even more meaningful.
These three words in 1 month were uttered
900 times in Canada
1,500 times in the UK
7,500 times in the United States
In April 2023, I reached out to people with Parkinson's that I had contact with from all over the world. I asked them about the day they were diagnosed, and I heard too many stories of people walking into a doctor's office, being told, "You have Parkinson's. Here are some pills. Come back and see me in six months." This often happens to people who weren't expecting a Parkinson's diagnosis or who were often alone not expecting to hear such a life changing diagnoses that day. Many are left with nowhere to turn, spending months or even years feeling isolated at home. There is a vast of wealth of information, often from fellow PWP. This is one of the reasons I'm dedicated to spreading awareness and providing resources for those newly diagnosed. You are not alone.
76% of people have waited up to a year for a diagnosis
24% had no idea
24% suspected that they might have Parkinson's
45% of people were given this diagnosis while alone at the doctor's office
19% were misdiagnosed
12% were diagnosed and told to go home with a prescription and to come back in 6 months, period.Write your text here...