The Three Pillars That Help Me Live With Parkinson’s
1. Build Trust With Your Medical Team
The first and most important step is finding a healthcare provider you trust. Ideally, this would be a movement disorder specialist—a neurologist with specific expertise in Parkinson’s. My specialist once told me, “I’m with you for life,” and I trust her completely.
If access to a movement disorder specialist isn’t possible, then a knowledgeable neurologist or a great family doctor can also be invaluable. What matters most is finding someone you can trust, ask questions, and have open conversations with. This relationship is a cornerstone of managing Parkinson’s.
2. Prioritize Exercise
Exercise is not just helpful—it’s essential. Research consistently shows that exercise is one of the few interventions that can slow or even stop Parkinson’s progression. The key is to find an activity you enjoy because if you don’t love it, you won’t stick with it.
For me, exercise isn’t just about physical health; it’s about reclaiming control over something in my life. While medications are critical, exercise is the one thing we can control—and it makes all the difference.
3. Educate Yourself (Wisely)
Knowledge is power—but it’s also a double-edged sword. The internet is full of information, not all of it accurate or helpful. Take the time to seek out reliable, evidence-based sources and stay informed about Parkinson’s.
Learning about the disease has helped me advocate for myself, make informed decisions, and feel more empowered. Just remember to pace yourself and avoid getting overwhelmed.
